2014 CONFERENCE INFORMATION
We’re pleased to announce PSC Partners Seeking a Cure’s tenth annual conference for PSCers and caregivers which will take place in Denver, Colorado April 25-27, 2014 at the Hyatt Regency Denver Tech Center located at 7800 East Tufts Avenue. We are honored to be presenting our 2014 conference in conjunction with Drs. Greg Everson and Lisa Forman and their colleagues at University of Colorado Hospital and Drs. Michael Narkewicz, Cara Mack and Shikha Sundaram of Children's Hospital Colorado.
Be sure to save the date and join us for our tenth anniversary celebration!
Watch here for more details as they become available.
IMPORTANT HOTEL INFORMATION
All 2014 PSC Partners conference events (starting Friday afternoon April 25th) will take place at the Hyatt Regency Denver Tech Center, located at 7800 East Tufts Avenue, Denver, CO 80237. Additional information about the facility is available on the hotel’s website at: www.techcenter.hyatt.com.
We are pleased to offer a discounted group rate for conference attendees. The Hyatt has set up a personalized group page for conference attendees to reserve their hotel rooms. To take advantage of our special group rate of $109 per room per night plus taxes, please click HERE. If additional reservation assistance is needed, please call 888-421-1442.
These group rates are available to our conference attendees from April 24-28, in the event that you would like to extend your stay before or after the conference. The special room rate will be available until March 28, 2014 or until the group block is sold out, whichever comes first. After March 28th, the discounted group rate will only be offered depending on availability and prevailing rates, so it is strongly advised that you make reservations as soon as possible to take advantage of the group rate.
7800 East Tufts Avenue Denver, Colorado, USA, 80237,
Telephone: 303 779 1234, Fax: 303 850 7164
From Denver International Airport (24 Miles):
Exit airport on Pena Boulevard South to I-70 West. Continue on I-70 to I-225 South. Exit 2A (Tamarac/DTC Boulevard) and turn left. Go under Interstate, turn right on Tufts Avenue. Hyatt Regency Denver Tech Center is at the end of the street.
Coming from the North:
Follow I-25 South to Belleview Avenue Exit and turn left. Continue through one traffic light, turn left at 2nd light, South Ulster Street. Go to (2 lights) East Tufts Avenue and turn left. This is the entrance to the hotel.
Coming from the South:
Follow I-25 North to Belleview Avenue and turn right. Continue through one traffic light, turn left at 2nd light, Ulster Street. Go (2 lights) to East Tufts Avenue and turn left. This is the entrance to the hotel.
Coming from the East:
Take I-70 West to I-225 South. Exit 2A (Tamarac/DTC Boulevard) and turn left. Go under Interstate, turn right on Tufts Avenue. Hyatt Regency Denver Tech Center is at the end of the street.
Coming from the West:
Take I-70 East to I-25 South Exit. Go South on I-25 to Belleview Avenue Exit and turn left. Continue through one traffic light, turn left at 2nd light, South Ulster Street. Go to (2 lights) East Tufts Avenue and turn left. This is the entrance to the hotel.
We sincerely thank our 2013 conference sponsors:
Gold Level Sponsors
Silver Level Sponsors
Bronze Level Sponsors
Aubrey Goldstein and Caroline Vanneste
How to Become a Conference Sponsor: We are always looking for individual and corporate conference sponsors, so if you are interested in becoming a sponsor or if you know someone whom we should contact, please email us at firstname.lastname@example.org. For a list of the conference sponsorship opportunities, please click here.
How to Become Our 2015 Conference Co-Chair: Are you interested in becoming our 2015 conference co-chair? If so, please click here to see how to start the process.
Here are some post conference comments and articles from 2013 conference attendees:
"This conference was wonderful for me as a newbie. My mentor was terrific and although I learned tons, it was the friendships that were forged that mean the most. Just being around others with the same disease was great."
"Thank you for existing! I’ve had an amazing weekend. I was initially nervous about coming, not looking forward to hanging out with “sick” people. In reality, I’ve been surrounded by friends I had not yet met and people that get me! It’s been great sharing stories about food, relationships, medications, procedures, and all other life stuff. Looking forward to Denver!"
"Just having the opportunity to see everyone is something I look forward to all year long. The organization for the conference is amazing. You always do a fantastic job!"
My Conference Experience | Erik Loy (Teen PSCer)
My conference experience started the day before we left for Pittsburgh. That Thursday night, before we had planned to leave, we got a call from Cleveland Clinic saying that they had a potential donor for me.
However, I wasn’t told until later that I was the backup recipient. So as we left for the hospital, all the emotions seemed to hit me at once. When we got there, they put in an IV and started fluids, so we assumed the primary recipient hadn't panned out, and I was going to get the liver. We waited until 2:00 AM before they told us the primary recipient had accepted the organ. So we went home, got a few hours of sleep, and left for the conference.
My mind was all over the place on the way down, and even for most of the first day. The conference was like a vacation from the real world though. It was so nice that I could be tired and that no one would say anything if I went to my room and took a quick nap. Before Pittsburgh, I had never met another teen with PSC. I knew several older men with the disease and a few women, but being able to talk to other teens was so much fun. There were three of us and we never left each other's sides because we just connected so well. I made so many friendships I know will last forever. I definitely found a second family at the conference and I'm so happy I did because I know I can turn to them whenever I need support. The conference was one of the best experiences of my life, and I plan to go to many more.
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It’s Not Just About Having Something in Common
by Suzanna Donahue (PSCer)
It was with mixed emotions that I registered my husband and myself for the annual PSC Conference. It wasn’t too long after registering that I questioned this use of our limited funds. I (as true for most PSCers) had done an awful lot of research and figured there was little more to learn, despite others saying that they learn something new every year at this conference. However, I remained hopeful that even if the presentations proved to be a repetition of what I already knew, I could leave there with some small foundation of a social network that I knew I would need in the near future. The conference was in my backyard. Surely, I would meet others in the area who are also dealing with this disease.
Newcomers to the conference are often overwhelmed, and we were certainly not immune to that feeling. Thankfully, “mentors” were assigned to the newcomers and we left feeling like we had at least one person we knew and felt comfortable with. Next was the Welcome Dinner. An enormous ballroom was filled with tables and people – people who are dealing with PSC either as the patient, family member, caregiver, or friend. I sat there staring at all these people and thought in my best imitation of a three year old not getting her way, “I do NOT want to be a part of this group.” I didn’t want anything to do with this. I wanted to get out of Dodge.
I sat at my table filled with mostly 20 somethings (I’m 42), and listened in awe to their stories(everyone there has one) and how they are dealing with it with so much grace and humor. I didn’t feel much better about my lot in life that evening, but a seed of something had been planted.
The next day was filled with presentations, some of which were given to all attendees at breakfast, and some breakout sessions. We also had breakout groups of people with similar “positions,” if you will: caretakers, teen PSCers, post-transplant PSCers, etc. I could not easily sum up everything I learned at the presentations, but trust me when I say, you really do learn something new at these conferences despite all the research you may have done on your own.
I met so many people with so many different stories that held one common theme: We are all affected, in some way, by PSC. I worried about how this conference would affect our outlook. I was concerned about my husband being overwhelmed by the stories of other caregivers and had suggested he avoid the group (thankfully, we were talked out of that idea). I was concerned that I would see what my future held and would come out of there more depressed. Instead, we both left there with something we never expected: a family we never knew we had. It’s not just about the stories. It’s not just about having something in common (although that is a big part of it).
This disease can be very isolating, and it is comforting to know we are not alone in this battle. The fact is, these people are truly amazing and wonderful human beings. I came in feeling Overwhelmed and alone and left there feeling connected and inspired. And, honestly, I cannot imagine going to battle without these incredible people by my side.
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To read “I Refuse to Miss One of These Gatherings”, click here.
To read “The Top Ten Reasons to Attend a PSC Partners Conference”, click here.
Thank you for your interest in attending the tenth annual PSC Partners Seeking a Cure conference. It will be an informative and fun weekend filled with new insights, caring friends and a sense of hope!
If you need further information or have any questions, please write to Ricky or Meegan at email@example.com