Annual Conferences

PSC Partners Seeking a Cure holds a conference in the spring of each year in conjunction with a major medical center. Usually held in April or early May, the conference draws patients and caregivers (spouses, partners, parents, siblings, and friends of PSC patients) to learn about the latest research on treatments, medications, procedures, and the disease’s outlook. There are support and discussion sessions with physicians and with other attendees.

Speakers at our conferences are leaders in the PSC world and they come from the US as well as international PSC treatment and research centers.

Time is also set aside for fun and entertainment. Many participants say the conference is life changing. Friendships are forged and attendees go back home with renewed energy to cope with PSC, both medically and emotionally.

Conference content from our five previous conferences is online at this site, under the Previous Annual Conferences tab; click here to go to the tab. Our newsletter, The Duct, also covers the conference in detail, generally in the Summer issue. Click here to go to the newsletter page.

Personal Stories

One of the most important events of my life

This conference was probably one of the most important events of my life. I am so grateful that you created this foundation and have recruited such talented and accomplished volunteers to actualize its potential.

Conference attendee 2009

Felt empowered

The opportunity to hear directly from doctors that are working on this disease has inspired me to want to give more. It was also extremely inspiring to hear what they are working on and where the research is going. I was a first time attendee and this event left me feeling empowered. Also, the conference was run much more professionally than I expected for the cost. Great location and meals, overall extremely well run.

Conference attendee 2009

Great value of becoming more educated

I have to admit that the Sunday morning go-around with other attendees was particularly helpful to me. The sessions on Saturday were also very important and well done. Even though the material presented by the speakers on Saturday was at times difficult to hear, I know the great value of my becoming more educated about the disease and its ramifications for both my daughter and the rest of our family.

Conference attendee 2009